In trying to understand CAH, the most important glands to consider are the adrenal glands and the pituitary gland. There are many different types of hormones and many endocrine glands, each of which makes its own special hormones. Female type sex hormone, for example, is made in the ovaries and acts elsewhere in the body to cause breast enlargement, broadening of the hips, and periods.
They are produced in one place by an endocrine or hormone-producing gland, and act somewhere else in the body. Hormones are the chemical messengers in the body.
In CAH, the child is born with overgrown adrenal glands. The word ‘hyperplasia’ means ‘overgrown’. CAH involves the hormones of the adrenal glands. The nature of CAHĬAH is congenital meaning it is present at birth. There are peer support groups that cover a spectrum of variations in sex characteristics that can also give you support, these include groups such as the Intersex Peer Support Australia and the Congenital Adrenal Hyperplasia Peer Support Group Australia CAH SGA. CAH peer support group for people with CAH, their parents and their friends exist and can provide support and assistance, your doctor or clinical coordinator can put you in touch with them or you may find them on the internet.
To maintain this state of good health, people with CAH do need to take medications, but this becomes accepted as part of life. They can do anything they want to, including building careers, forming relationships and having children. The condition does not impact on life expectancy. People with CAH enjoy excellent health and Updated in 2021 by the RCH Endocrinology, Gynaecology and Urology teams.ĬAH is a fairly uncommon diagnosis, but one which is well understood and for which good treatment is readily available.
Congenital Adrenal Hyperplasia Written by Professor Garry L Warne, Illustrations by Jocelyn Bell
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